The Cause
We are running this relay as a fundraiser to support research efforts dedicated to finding
a cure for myotonic dystrophy. We are doing this in honor of a friend of ours, Barry Wald,
who has this disease. Many of us have run with Barry on the "Endangered
Species," a twelve person relay team that has completed the Oregon Hood-to-Coast
relay (a run from Mt. Hood to the Oregon Coast) eight times and which has also twice
tackled the Providean Relay in California (from Calistoga to Santa Cruz). Others have
known Barry since high school.
Barry was diagnosed with myotonic muscular dystrophy in 1989. Since then he has had
cataracts in both eyes, a symptom of the disease, resulting in surgery and the
implantation of artificial lenses. More recently, his leg muscles have deteriorated to the
point where he can no longer run at all. Because the disease is degenerative; Barry cannot
be sure what the future holds in terms of further muscular deterioration.
Myotonic dystrophy is hereditary and therefore tends to run in families.
One of the characteristics of the disease is that it tends to become more serious in
successive generations.
To see a picture of Barry with two of the relay participants, please click
here  (left to right Craig Johnston,
Nick Burns, Barry Wald).
To learn more about myotonic dystrophy, please feel free to visit the following websites:
Myotonic dystrophy
... MYOTONIC DYSTROPHY is an inherited disorder in which the muscles
contract but have
decreasing power to relax. With this condition, the muscles also become weak ...
www.ncbi.nlm.nih.gov/disease/Myotonic.html - 5k - Cached
- Similar
pages
Congenital Myotonic Dystrophy
- Muscular Dystrophy
... International Myotonic Dystrophy Organization. WEB
BASED SUPPORT SITE AND COMMUNITY FORUM. ...
http://www.myotonicdystrophy.org - 29k - Cached
- Similar
pages
myotonic dystrophy
... To receive our free health newsletter, please enter your E-mail address.
myotonic dystrophy. ... Search for information about myotonic dystrophy.
...
chorus.rad.mcw.edu/doc/01058.html - 5k - Cached
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pages
Untitled
... MYOTONIC DYSTROPHY. ... Myotonic Dystrophy
(MD) belongs to a growing family of disorders
where the genetic mutation involves unstable trinucleotide repeats (C_G): ...
www.icondata.com/health/pedbase/files/MYOTONIC.HTM - 6k - Cached
- Similar
pages
Muscular
Dystrophy Campaign Congenital myotonic dystrophy
March 1994. Congenital myotonic dystrophy. ... Can a child with
congenital
myotonic dystrophy have the usual inoculations? Yes. ...
www.muscular-dystrophy.org/information/Key%20facts/conmyot.html - 15k
- Cached
- Similar
pages
Myotonic Dystrophy (DM)
(aka Steinert's Disease) | MDA
Myotonic Dystrophy (DM) (Also known as Steinert's Disease) ...A
Guide to Related Materials on MDA's Web Site. ...
www.mdausa.org/disease/dm.html - 13k - Cached
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pages
Myotonic Dystrophy Support Group
Myotonic Dystrophy Support Group. Charity Number ... What
is Myotonic Dystrophy? Myotonic Dystrophy ...
www.comcom.org/mdsg/ - 6k - Cached
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pages
Myotonic
dystrophy: Pathology
... MYOTONIC DYSTROPHY. Myotonic dystrophy: Late
changes. H&E stain. Numerous internal
nuclei: Often in longitudinal chains; Myopathic changes: Fiber size variation. ...
www.neuro.wustl.edu/neuromuscular/pathol/myotdyspath.htm - 3k - Cached
- Similar
pages
Myopathies
without EOM Weakness: Facioscapulohumeral + Myotonic ...
... MYOTONIC DYSTROPHY. ... Other myopathies: ...
Patient fact sheets:
FSH ; Myotonic dystrophy Patient information ...
www.neuro.wustl.edu/neuromuscular/musdist/pe-eom.html - 44k - Cached
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pages
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