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General
Information We are a group of friends who are going to run a relay from Tillamook,
Oregon, to Boston, Massachusetts, in May and June of 2002. We will cover approximately
3,350 miles in 30 days, with each runner averaging just under 60 miles per week. We are
doing this to raise money for research on a particular form of muscular dystrophy known as
myotonic dystrophy, in honor of a friend who suffers from this disease. Myotonic
dystrophy, also known as Steinert's disease, is an inherited disorder that affects about
one in every 8000 people. In general, it results in muscle weakness and myotonia (an
inability of muscles to relax after use), both of which get more severe over time. It can
also lead to other problems, including cataracts and mental deficiency. It is an extremely
variable condition with respect to its severity, the systems of the body it affects, and
its age of onset, even within the same family. Right now, there is no cure for this
disease and no significant treatment. If you would like to learn more about myotonic
dystrophy, please click here. Our basic game plan is that each runner will run all but one day during
each segment in which he or she is involved. During the first segment, for example, this
means that each runner will run for seven out of the eight days, with a rotating group of
12 runners (out of the 14) running each day. On each day that he or she is running, each
runner will run two legs of approximately 5-miles each. In that manner, we as a team will
average approximately 115 miles each day (with the exception of two light days of 37 and
26.2 miles). And, as mentioned above, each The team will be a little bigger during the final segment of the relay.
One of our runners, Nick Burns, is going to share his leg with his nephew,
Nick Hutchins, a high school student from North Carolina. Nick Hutchins is running to
honor the memory of his brother Andrew Hutchins, As a group, we are far from world-class runners. We range in age from 14
to 60. Most of us run regularly, but two or three essentially started from scratch to
prepare for this event. We are hoping to average under or close to 7 1/2 minutes per mile
as a team. If you would like to learn On the last day of the relay, the runners will conclude by covering the
Boston Marathon course. Each runner will run as much (or as little) of the course as he or
she pleases. Some of the runners are planning on running the entire course. Others will
join that group en route. The Although he can no longer run, our friend, named Barry, is an active
bicyclist. Barry is determined to bicycle with his sister Elizabeth for at least some
portion of the miles that the team will be covering each day. Additionally, other friends
may join along to make a bicycle relay All of the runners and bicyclists have made three commitments in signing up for this run. First, each participant has committed to raising a bare minimum of at least $1 per mile ($3,350) in pledges as a precondition to taking part in the relay, and to trying to go well beyond that by setting a personal fundraising goal of $10,000 in pledges. Second, each participant has committed to cover any and all of his or her expenses associated with the relay (except to the extent that some sponsors may offer to defray some of these expenses through either in-kind gifts or monetary contributions specifically earmarked toward expenses). This is to ensure that all sums raised through either per-mile or general contributions will in fact be dedicated solely to supporting the desired research efforts. We (the runners and potential bicyclists) are actively seeking tax-deductible contributions toward funding the desired research efforts. We are also actively seeking corporate sponsors. If you would like to learn more about how you can contribute toward this effort, please click here. If you would like to see where we are in our fundraising efforts to date, please click here. If you would like to see our list of corporate sponsors, please click here And finally, each participant has pledged to be in shape to cover the
required miles without too much difficulty.
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